Showing posts with label disability. Show all posts
Showing posts with label disability. Show all posts

Monday, 10 April 2017

MY DAD: BORN THIS DAY 1924

Today would have been my dad's 93rd birthday.
He isn't here to celebrate it with us, but we remember him with love through the years.
Dad died at 65, 20 years after suffering a series of massive strokes at 45 (or as the doctor airily insisted to my mum, who knew only too well what had happened, "It's just a touch of bad bronchitis, Mrs Barrass!"). The doctor walked out of my parents' bedroom that day, leaving my mum bereft and alone with the obvious lie that my dad had merely a bit of a chest infection, even though his speech was slurred and he was weakly doing the opposite of every action, pushing away when he should be pulling towards, spilling when he should be holding steady.
Only a second opinion brought diagnosis, but soon the ambulances were on strike and he was forgotten for much of the time he should have been fetched to physiotherapy. Such were the times at the dawn of the 1970s. The strokes left him permanently disabled and unable to do anything without support. For many things he most loved, that meant not enjoying them at all, ever again.
At 8, I saw the happy, strong, capable, funny dad who used to stand on his head to make me laugh and gave me fireman's lifts till I was hysterical with giggles, turn overnight into a stranger who struggled to make himself understood by slowly spelling out words on my old toy chalkboard with magnetic letters, choked at almost every meal and lived in a huge hospital-issue iron bed in our tiny front room with calipers, pulleys, feeding cups, commodes, canes and humiliating helplessness.
No more running down the path, past the freight weighing shed, across the yard, along the platform to meet him at the little station at the bottom of our garden where he worked as head porter and shunter. No more that thrill of hearing the purring crescendo of the engine of his motorbike as he arrived at the school gates to whisk me off home or on some impromptu adventure in the Yorkshire countryside.
Dad overseeing my first steps on the lawn
But that happy, strong, capable, funny dad was still inside that often child-like, stubborn stranger as I learned to understand, growing up in the shadow of his loss of freedom and dignity. So many things remind me of him with thankfulness: maps, bikes, unplanned picnics, cherry genoa cake, corned beef sandwiches with brown sauce, trifle, playing patience, silly black-and-white movies, radio comedy, pit ponies, mystery outings in the motorbike-and-sidecar, steam trains, railways, picking the second favourite in horse races on TV, the spiral staircase up Hooton Pagnell church tower, watching the wrestling and scrambling and snooker, tinkering with things, laughter with crinkled-up eyes.
Me & Dad near Filey, c1965
My next book, Cloudhover Solstice, is dedicated to him, set in the places on the beautiful Yorkshire Coast my dad loved and which, without him, I might never have discovered or laid down such treasured memories that keep him alive in my heart. I could go on, but I'll just say:
"Happy Birthday, Dad! We love you and we'll never forget!"
Dad & his only child - yours truly, 1961
My dad, porter at Bolton-on-Dearne railway station in the last days of steam.
Quintessential Yorkshireman and a decent, lovely lad.

Saturday, 5 November 2011

Ricky Gervais using Humpty Dumpty language?



  “I don’t know what you mean by ‘glory,’ ” Alice said.
    Humpty Dumpty smiled contemptuously. “Of course you don’t—till I tell you. I meant ‘there’s a nice knock-down argument for you!’ ”
    “But ‘glory’ doesn’t mean ‘a nice knock-down argument’,” Alice objected.
    “When I use a word,” Humpty Dumpty said, in rather a scornful tone, “it means just what I choose it to mean—neither more nor less.”
    “The question is,” said Alice, “whether you can make words mean so many different things.”
    “The question is,” said Humpty Dumpty, “which is to be master      that’s all.”
    Alice was too much puzzled to say anything, so after a minute Humpty Dumpty began again. “They’ve a temper, some of them—particularly verbs, they’re the proudest—adjectives you can do anything with, but not verbs—however, I can manage the whole lot! Impenetrability! That’s what I say!” * quote from Lewis Carroll's "Through the Looking Glass"


Just reading an article in today's online Guardian Culture Section Ricky Gervais: "Bring on the Haters"

How like Humpty Dumpty's stance on semantics Gervais' own perception of the controversy over his use of certain offensive words is.  


I'm not a "hater". I've probably cried with laughter at "The Office" as much as anyone. But I know the "in real life" derision and misperception fostered by his previous jokes about M.E. He joked at one stand-up show how he'd seen someone collecting for M.E.:

-M.E.? Not MS - not the crippling wasting disease. No, the thing that makes you say 'I don't wanna go to work today'.

There was a genuine M.E. sufferer in the room that day. She had to endure the humiliation of the whole room applauding and exploding with laughter at what was, whether Gervais would admit it or not, her expense and the expense of all M.E. sufferers who face the very ignorant attitudes being celebrated and reinforced in the said joke.


Then, recently, we have the outrage caused by the comedian's latest tweeting of an offensive word used to belittle people with Downs Syndrome. Gervais claims he has it on his own authority that the word has changed its meaning. 

Many have challenged him. Yet even in this latest article, all but the brave mum of two disabled children with whom he deigned to discuss the matter, are now labelled as his "haters". Again he paints himself as the hero and victim of the sphere where he dreams he has rewritten the rules of meaning. A tiny world focused away from empathy, compassion and any sense of connection with the lives of others more vulnerable than Mr Gervais.


As his new series' title says: "Life's Too Short".


Life's too short to forget your humanity and the responsibilities that go hand in glove with the rights of free speech. Otherwise, you're just like Humpty Dumpty in his sneering superiority that a word means what you "choose it to mean - neither more nor less". Life's too short to forget that words belong also to the hearer once they are spoken or written. Every mystified, indignant Alice can challenge you then. You can go on believing your own propaganda of course. But it doesn't save you from falling off the wall.