Showing posts with label chronic illness. Show all posts
Showing posts with label chronic illness. Show all posts

Friday, 18 January 2019

I'LL BE RIGHT



That knot in your stomach. You know it. You feel it, too, don't you?

You feed it with worry and fretting about the future. Its favourite diet is 'might happens' and 'what ifs'. It ties itself tighter. It dyes itself deeper into darkness, knitting itself into a jacket with bristly threads.  You try to unpick it with distractions. You try to cast off its stitches but the needles of denial keep clicking.

Suddenly your mind is spinning. You feel shipwrecked on a distant horizon. Life feels remote and you picture yourself all alone, isolated, nervous, jumpy. Your hear an echo of your own helpless voice crying out, sobbing like you did as a child when you once felt abandoned and anxious decades ago.

You come to the end of your rope. You creep, broken, into silence. You let your babbling mind relax. You shush it firmly as it warns and scaremongers. You're Mary Poppins closing the beak of her parrot-headed umbrella.  When it starts to get the message, your mental chatter quietens its chuntering for a space. Just a space, so the silence can break through. Then the frantic little knot, the node of grief and anxiety, smiles at itself being gently acknowledged, and as your soul reminds itself of being one with all creation, you suddenly find the knot itself has unravelled and lost its kinks and snarls. Under all the surface shimmer of dire imaginings, you get a peek at the solid ground underneath.

Then there is a wideness, humming with light. You know for certain the truth that you are not floating in abandonment at all, but tenderly held, perfectly still, in love and security of another kind – the peace that's beyond words, or images or concepts. It waits for you so humbly, while you clumsily juggle with your mind’s plunge into the past, as it tries to recall better times while stopping off to rerun all the worst moments etched unhelpfully, obsessively, in memory; while your thoughts pick nervously at the imagined emptiness of the future, with that sense of undefined, vague and untouchable dread.

I hear from my heart: “I can't help with what you dread in the future. I can only be here with you in this moment. Here we can deal with everything that is, together as one.”

So I choose to be here. Not to ‘stay’ here, because change and impermanence is a given. We dread change too, don't we, when we make it into a choice, or link it to the uncertainty of the future? No. I choose to be here. Only here and now is rock solid liquid reality. Here I am beloved, with a love that is everywhere and everything, that is refreshed to perfection every moment, before that perfection can fall away even for an instant. Only sometimes, when the knot makes itself felt inside, I lose sight of this still centre and I escape into the captivity of mind-buzzing absence.

I've spent so many years of my life caught up in my mind's fantasies. The world of misery was always waiting when I came back to earth.  Like so many others, I've walked through a featureless wilderness of illness during these past few decades. After an initial ‘my life is over!’ moment, when I became so ill,  knees chopped from under me, unable to function from the illnesses that stalked me and ate me alive, I've reached a clearing. 

Clearings give us a new perspective on the surrounding forest with its thickets of thorns and hidden pits. Now I am finding my heart somehow drawn deeper and stiller than ever before. Nearer to silence's lucid clarity than I was, even in those active, fervent years when I was free to serve, travel, and minister wherever I was called to be. 

Nothing can quench that love at the very kernel of life itself. It never goes out and far from abandoning us to grief and cynicism for ever, it waits inside us till we can stop running and shouting and weeping for long enough to realise it has always completely been with us, and within us.

True joy comes welling up. Never pushy, never strident. It's always waiting in the background while the mind is doing its dread and loathing thing, fighting to get away from the truth of eternity that never diminishes or fades away for a moment.

This morning’s headlines in the UK include medicine shortages even before full Brexit at the end of the month after next. I could worry. I could whine. Perhaps I will, again! I've had enough practice! I could stress and resist and identify as poor little me, the hard done-by. But whenever I can summon up the insight not to, I refuse to. I'm unfriending that knot inside. I’ll let my imagination go on a hike, with its worst case scenarios and its personal 'Project Fear'. I’ll be softly in my spirit in the silence, in the midst of it. 

I'll be right here. 

I'll be right. 

Tuesday, 10 January 2017

TREES OF HOPE


If this resonates with you,  you may also be interested in my other blog which I wrote from 2010-2012 about my journey with the autoimmune conditions M.E. and Type 1 Diabetes
M.E. MYSELF AND I ASK YOU

Thank you so much for dropping by and for your comments, shares and wonderful encouragement along the way!

Monday, 19 December 2016

2017 - COMING READY OR NOT!

Sunset, South Yorkshire (all words and images author's own)
We don't have to search very hard for reminders of why 2016 has more than its fair share of reasons to be lamented loudly and then forgotten. Nightmare politics and propaganda, media meltdowns, financial uncertainty, deaths of a golden host of celebrity friends we thought we knew like family, unfathomable tragedies, war and hatred we children of the sixties once dreamed the world would be too wise and too compassionate for by now.

Sometimes just checking in on social media, letting our eyes scan a newspaper or fix on current affairs on the screen, can trigger a tailspin into hopelessness, cynicism, bitterness, shrugged shoulders, hardened hearts.
Coral and apricot skies

Today I decided. Time to focus on things I might have missed if I hadn't lived through this rollercoaster year. Time to allow myself to be thankful. Thankfulness washes world-weary shredded nerves like a gentle spa of healing for the heart.

Thankfulness doesn't mean you're suddenly Pollyanna. Gratitude doesn't cocoon you from empathy with those suffering or excuse you from giving a damn. But it can help you find your footing on the slimiest slope. It can remind you of the motive that coaxes you to get up for another day.
Spot the pigeon

Here are my treasures gleaned and gathered from 2016:

-taking the plunge of going gluten-free, dairy-free, nightshade-free to try and give my body with its tortured neuroimmune system a chance to heal itself. Gradually glimpsing a life beyond the constant fog of exhaustion, pain and sickness. Doesn't mean I'm miraculously cured of a lifelong knot of autoimmune illnesses, but it seems to have allowed me the blessing, at long last, of better days. I've even had to reduce my blood pressure pills down to the very minimum and my insulin cartridge lasts me a week! A couple of dried dates can bring me back from a low blood sugars now instead of 30 years of severe hypos rescued by jelly babies and lucozade! Result!

-discovering water Kefir grains, brewing homemade probiotic ginger beer and soda and enjoying what a positive effect it seems to have on my digestion. Plus I'm so attached I think of my little jellified chums as pets now, giving back so much more than they get from a shot of sugar and mineral water! Still going strong after six months, they're currently having a little rest and recuperation in my fridge over the holidays! They so deserve it! 
Water kefir in spring water

-being well enough for my first longed-for holiday, five days in June in fabulous Flamborough to restore my soul and get inspired for my novel which is set along that stunning coast. 
North Landing, Flamborough, East Yorkshire 

-reconnecting with my bestie from schooldays after she resettled in the UK after decades living abroad. Our weekly Skype adventures, texting, laughter and far-ranging heart-to-hearts till the early hours are a joy to my spirit. The years fall away and we're in our teens again, but even closer with the richer perspective of the years apart.
My bestie and I conquering the Skype gremlins 

-teaching myself how to bake the most moist, rich, delicious chocolate cake I've ever tasted, using coconut oil, almond flour and ingredients that no longer make my blood sugars spike, with the joy of never needing to deprive myself of my ultimate salted caramel treat! That is, if I've ever got any left after sharing it with eager friends and family!
Gluten-free salted caramel chocolate cake

-dog-sitting a variety of furry friends of friends who fill up, temporarily, that dog-shaped hole in my heart since my own lad passed away.
Cocker Spaniel sisters discovering treat puzzle ball

-inching towards the publication of my second novel, “Cloudhover Solstice” with all the attendant pleasures of plotting, researching, dreaming, writing and editing, plus the privilege of knowing how much my characters have found their fond place in the imaginations of my readers. So thankful to the kind few who support me by leaving a review, sharing posts, tweets and spreading the word. You are worth more than gold to me, even if I never earn a penny from my passion!
Work-in-progress novel. Not the *actual* cover!

-adventuring on a fungus foray by day and a bat walk by night in local woodland and having the quiet thrill of being at one with the wonderful natural world that surrounds us in this lovely corner of Yorkshire.
Orange Birch Bolete on the Fungus Foray in October

-soap! After night after night of sciatic twinges and cramps, googling in sheer desperation for help with agonising, sleep-shrinking restless legs, I came across what sounds like some mad old wives' tale of putting soap in a sock in your bed. I bought a cheap tablet of soap from the Co-op the next day, stuck it in an old knee-high, shoved it sceptically between the sheets. I haven't had full-blown cramp since that first night! No more idea why this works than anybody else – maybe I'm a mad old girl, too, but who's counting? 
Soap in a sock

-acquainting myself with my new all-singing, all-beeping insulin pump, Humph Mk II and his handset, the rather feisty Rita the Second. Yes, I still scream at Rita when I'm hypo and she's nagging me to eat. I still roll my eyes at Humph when he decides he needs new batteries in the middle of something more interesting. But you've got to love technology and ingenuity. They're keeping me alive from one moment to the next. My great gran was dead at 42 for lack of such inventions being widely available in the 1920s.
Me and my portable pancreas


-the birds, the Moon, passing planes, the trees, the flora and fauna, the clouds, the sunsets, the faces, the patterns, the colours that have kept my camera clicking throughout this year and the privilege of reliving eternally these moments frozen in time and sharing them with friends the world over.
Full Grain Moon over the wood


-friends, old and new, online and with flesh on, who remind me how many truly wonderful and special people are on this planet, fighting to ensure that love will always win over prejudice, bigotry and hate.

2017, you're welcome! You might not be gentle. You might not be all we hope for. But I'm coming to make the best of you, ready or not!